Cooper went to the doc on Wednesday, so of course we had some changes. He's on a couple of new medicines- one for 2 weeks, one for a month. Also, his breathing schedule has changed slightly, as has his water requirements. His urine was REALLY concentrated, so we've increased his water by 10 mL each time.
8 a.m.- Breathing treatment: 2 puffs Albuterol, 2 puffs Atrovent, 4 puffs Flovent plus CPT's. He also gets Sabril, Prevacid, Robinol, an antibiotic, and 50 mL of water.
9:30- He gets erythromycin. This is also an antibiotic, but it encourages his stomach to empty. He was having a hard time moving the food that he was getting.
10 a.m.- "Eats" 125 mL formula through the pump.
12 p.m.- He gets another 50 mL of water.
1:30- He gets erythromycin.
2 p.m- "Eats" 125 mL of formula.
4 p.m.- Breathing treatment: 2 puffs Albuterol plus CPT's. He gets 50 mL more water.
5:30- He gets erythromycin.
6 p.m.- "Eats" 125 mL of formula.
7:30- He gets erythromycin.
8 p.m.- Breathing treatment: 2 puffs Albuterol, 2 puffs Atrovent, 4 puffs Flovent plus CPT's. He also gets Sabril, Prevacid, Robinol, a puff of Nasonex in each nostril, the antibiotic, and 50 mL of water.
9 p.m.- We hook him up to the feeding pump for his 10 hour overnight feed. He "eats" 39 mL an hour.
Jealous yet?