An even newer schedule (these seem to be helpful)

Cooper went to the doc on Wednesday, so of course we had some changes.  He's on a couple of new medicines- one for 2 weeks, one for a month.  Also, his breathing schedule has changed slightly, as has his water requirements.  His urine was REALLY concentrated, so we've increased his water by 10 mL each time.

8 a.m.- Breathing treatment:  2 puffs Albuterol, 2 puffs Atrovent, 4 puffs Flovent plus CPT's.  He also gets Sabril, Prevacid, Robinol, an antibiotic, and 50 mL of water.

9:30- He gets erythromycin. This is also an antibiotic, but it encourages his stomach to empty.  He was having a hard time moving the food that he was getting.

10 a.m.- "Eats" 125 mL formula through the pump.  

12 p.m.- He gets another 50 mL of water.

1:30- He gets erythromycin.

2 p.m- "Eats" 125 mL of formula.

4 p.m.- Breathing treatment: 2 puffs Albuterol plus CPT's.  He gets 50 mL more water.

5:30- He gets erythromycin.

6 p.m.- "Eats" 125 mL of formula.

7:30- He gets erythromycin.

8 p.m.- Breathing treatment:  2 puffs Albuterol, 2 puffs Atrovent, 4 puffs Flovent plus CPT's.  He also gets Sabril, Prevacid, Robinol, a puff of Nasonex in each nostril, the antibiotic, and 50 mL of water.

9 p.m.- We hook him up to the feeding pump for his 10 hour overnight feed.  He "eats" 39 mL an hour.

Jealous yet?