He's home!!

Cooper is home from the hospital on a couple of conditions.  One, he's still on oxygen.  A pain, but better than being in the hospital.  Two, we have to continue to give him breathing treatments every four hours (except for the one at 3 a.m.).  Fine, just get us out of there!

The pulmonologist wanted to change Cooper's g-tube to a j-g-tube.  I didn't want this for a couple of reasons.  One, it would mean he'd constantly be on continuous feeds.  He would literally be attached to a feeding pump at all times.  For 6-8 months.  Also, it would mean a small surgery.  So, she consulted with GI.  The GI doc was much more practical.  We are going to try several things before deciding to change his tube.  We've changed his feeding schedule and the way he is feeding.  If that doesn't work, there's a medicine we can try.  If that doesn't work, we can change his formula.  Etc.  The concern is that he is aspirating when he gets his food (even though the study they did this morning showed he wasn't).

So we're home with a whole new schedule.  Including all medicines, feeds, and breathing treatments, here is Cooper's (complicated, confusing, almost terrifying) schedule for at least the next few days:

Cooper’s Schedule

7 a.m. - Flovent

           Albuterol (CPT)

           Atrovent

8 a.m. – Stop overnight feed

            Prevacid

            Sabril

11 a.m. – Albuterol (CPT)

            Feeding (110)

2 p.m. – Feeding (110)

3 p.m. – Albuterol (CPT)

           Atrovent

5 p.m. – Feeding (110)

7 p.m. – Flovent

           Albuterol (CPT)

8 p.m.- Prevacid

          Sabril

          Start 12 hour feed (350)

11 p.m. – Albuterol (CPT)

           Atrovent