Brad says this website http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1464162/ has the most up-to-date information. It includes the drug Cooper is going to be taking, vigabatrin. The drug was only approved in 2009 in the US, but has been used since the 80's in Europe, Canada, etc.
I am a mom to Cooper and Semmes and living in Little Rock, Arkansas. My husband is a pediatrician at the amazing Arkansas Children's Hospital. Cooper has a genetical abnormality, a developmental delay, infantile spasms, etc. Semmes is the best little brother ever. We are taking it one day at a time and loving any and all progress that Cooper makes!
1 comment:
Praying for you Crady -- we love you, Brad, and Cooper!
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