It could be worse...

http://www.npr.org/2011/05/10/136137429/a-fathers-quest-to-help-his-severely-disabled-son?sc=fb&cc=fp

Cooper doesn't have this syndrome; I couldn't imagine if he did.  But this man raises similar questions to the one I ask.  He's been dealing with his son for years, though.  Cooper will hopefully move beyond this.